Informative Downloads

Materials

Access valuable information about Myelodysplastic Syndromes through our collection of downloadable resources. From informative PDFs to fact sheets, these materials are designed to provide helpful insights for anyone seeking a deeper understanding of MDS.

100 Questions & Answers
100 Questions & Answers

Newly revised and updated, 100 Questions & Answers About Myelodysplastic Syndromes provides authoritative and practical answers to the most common questions asked by patients and their loved ones.

Patient Materials
Guide to Assistance Programs
Guide to Assistance Programs

We have assembled a listing of assistance programs available to MDS patients. It is important to know that there is support for those who cannot afford medicine or other healthcare costs.

Patient Materials
MDS by the Numbers
MDS by the Numbers

This resource presents a concise yet comprehensive overview of key numerical insights, offering a data driven perspective on the prevalence, impact, and various aspects of MDS.

Patient Materials
MDS Glossary
MDS Glossary

When dealing with an illness the medical terminology can be just as intimidating as the diagnosis. This Glossary of MDS Terms will help you to better understand your diagnosis, symptoms and possible treatments.

Patient Materials
Out of Shape
Out of Shape

Bergit Korschan-Kuhle is a courageous woman. She has been living with the diagnosis of MDS since 2006. In “Out of Shape” she takes the reader on a journey from her first symptoms over a decade ago to the present day.

Patient Materials
Questions To Ask Your Doctor
Questions To Ask Your Doctor

Compiled by MDS patient groups and clinicians, this guide offers essential questions to ensure patients are well-prepared for consultations and better informed about their condition.

Patient Materials
Take The Time
Take The Time

This PDF explains abnormal blood cell production and its symptoms, such as fatigue and infection risks. It outlines treatment goals aimed at improving quality of life and the necessity of multiple treatment cycles. 

Patient Materials
Understanding Your MDS
Understanding Your MDS

Do you know your MDS subtype, IPSS-R score and gene mutation profile?

Patient Materials
What Does My Bone Marrow Do?
What Does My Bone Marrow Do?

A comprehensive guide that explores the intricacies of the bone marrow, shedding light on its crucial role in health and its connection to Myelodysplastic Syndromes (MDS).

Patient Materials

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Get in touch

Email

patientliaison@mds-foundation.org
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Address

The MDS Foundation
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Yardville, NJ 08620

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