Related Organizations

The Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) is a leading funder of research into bone marrow failure diseases in Canada. Our volunteer-run organization supports patients and caregivers across the country who are living with aplastic anemia, myelodysplastic syndrome (also called MDS or myelodysplasia) and paroxysmal nocturnal hemoglobinuria (PNH).

Abrale (Brazilian Association of Lymphoma and Leukemia) is a non-profit organization, with national coverage, created in 2002 by patients and family members with the mission of offering help and mobilizing partners so that all people with cancer and blood diseases have access to the best treatment.

A network of 131 chronic myeloid leukemia (CML) patient organizations from 96 countries on all continents, the CML Advocates Network serves as a resource for leaders of CML patient groups. As a patient and caregiver-led organization, it was established and is run by patients and caregivers. The organization aims to educate members about advocacy and health equity, empower patient groups to advocate, and implement advocacy initiatives in both low-middle-income (LMI) and western countries. It also aims to facilitate best practices sharing among patient advocates globally.

Since 1969 at the side of the patient and in favor of research to fight blood cancers. AIL promotes and supports scientific research for the treatment of leukemia, lymphomas and myeloma; assists patients and families by accompanying them at all stages of the journey through the disease with services adapted to their needs; It aims to improve the quality of life of patients and to raise public awareness of the fight against blood diseases.

The American Society for Transplantation and Cellular Therapy (ASTCT) is a professional organization focused on the advancement of hematopoietic cell transplantation and cellular therapies. It promotes research, education, and clinical practice in the field. ASTCT offers resources such as practice guidelines, educational programs, publications, and advocacy initiatives to support professionals and improve patient care. The society also organizes meetings and conferences to facilitate knowledge sharing and collaboration among experts.

The American Society of Hematology (ASH) is the world's largest professional society dedicated to the study and treatment of blood disorders. It supports hematologists through education, research, advocacy, and professional development. ASH offers a wide range of resources, including clinical practice guidelines, educational programs, and scientific publications, and organizes an annual meeting that brings together thousands of experts to share the latest advancements in hematology.

The Aplastic Anemia and MDS International Foundation (AAMDSIF) is the leading nonprofit dedicated to supporting patients with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AAMDSIF provides comprehensive resources including educational materials, support groups, and patient conferences. They also fund research for new treatments and advocate for patient needs, aiming to improve the quality of life for those affected by these conditions.

The Portuguese Association of Leukemias and Lymphomas is a non-profit IPSS, made up of
patients and family members, caregivers, health professionals and volunteers. APLL's strength is all of us! Together we are +strong! In our daily work, we encourage and strengthen relationships between everyone, namely patients, so that their trials are overcome.

Be The Match, operated by the National Marrow Donor Program, connects patients with life-saving bone marrow and blood stem cell donors. Focused on curing blood cancers like leukemia and lymphoma, the organization runs a global donor registry, supports patients and families through the transplant process, and funds vital research. They offer numerous ways to get involved, including joining the donor registry, volunteering, fundraising, and advocating for patients.

The Swedish Blood Cancer Association is Sweden's only interest organization that focuses solely on blood and blood cancers. To achieve our vision of "Knowledge and vitality", we fund blood cancer research, offer support and rehabilitation, conduct advocacy work and interest politics in blood cancer issues. We represent 16 member associations with about 5000 members around the country.

BMT InfoNet is dedicated to providing comprehensive information and support to patients undergoing bone marrow, stem cell, and cord blood transplants. Founded in 1990, the organization offers resources on the transplant process, managing side effects, and long-term health. They also facilitate connections between patients and survivors through support groups and mentoring programs. BMT InfoNet aims to empower patients with knowledge and support to improve their quality of life during and after treatment.

Blood & Marrow Transplant Resources offers patients having a bone marrow transplant (BMT) or peripheral blood stem cell transplant (PBSCT) access to an enormous amount of information about these procedures. You’ll learn everything you need to know to sail through your treatment with flying colors. For patients considering a transplant, Blood & Marrow Transplant Resources will give you the tools you’ll need to help you decide if one of these procedures is your best treatment option.

The Bone Marrow & Cancer Foundation (BMCF) is a national non-profit organization. It was created to support all cancer and bone marrow/Hematopoietic Cell Transplantation (HCT) transplant patients and their families, navigate the challenges of diagnosis and treatment. The BMCF was started by social worker and patient advocate Christina Merrill in 1992. The BMCF helps patients and their families throughout every aspect of their experience by providing vital financial assistance, patient navigators, counseling, emotional support programs, physician and hospital referrals, and opportunities for community and connection including the CancerBuddy app.

CSC uplifts and strengthens people impacted by cancer by providing support, fostering compassionate communities, and breaking down barriers to care. Everyone impacted by cancer receives the support they want and need throughout their experience.

The American Cancer Society is the leading cancer-fighting organization with a vision of ending cancer as we know it, for everyone. We are the only organization working to improve the lives of people with cancer and their families through advocacy, research, and patient support, to ensure everyone has an opportunity to prevent, detect, treat, and survive cancer. Learn more about who we are, what we do, and our plans for the future by exploring the areas below.

Founded in 1944, CancerCare is the leading national organization providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.

CancerNetwork^®, home of the journal ONCOLOGY®, provides multidisciplinary oncology professionals with practical and timely clinical information necessary to deliver the highest level of patient care. Expert authors and peer review ensure the quality of the journal’s articles and features. Focused discussions capture key clinical take-aways for application in today’s time-constrained practice environment.

CDC is the nation's leading science-based, data-driven, service organization that protects the public's health. CDC puts science into action to help children stay healthy so they can grow and learn; to help families, businesses, and communities fight disease and stay strong; and to protect the public's health.

The University of Pittsburgh School of Health and Rehabilitation Sciences (SHRS) is a nationally renowned leader in the field of health care education, research and clinical practice preparation. With 14 different disciplines related to health and rehabilitative care, SHRS shapes future generations of health care professionals—therapists, counselors, advocates, scientists, providers and practitioners—trained to serve the needs of all people regardless of background, levels of health or mobility. We are built on a legacy of academic excellence and innovation and fueled by passionate educators and researchers, allowing us to meet the health care and rehabilitation needs of today and drive meaningful change in the future.

The objective of the European LeukemiaNet is to integrate the leading leukemia trial groups (CML, AML, ALL, CLL, MDS, CMPD), their interdisciplinary partners (diagnostics, treatment research, registry, guidelines), industry and SMEs across Europe to form a cooperative network for advancements in leukemia-related research and health care and cure.

Severe aplastic anemia (SAA), myelodysplastic syndromes (MDS) and juvenile myelomonocytic leukemia (JMML) represent examples of a large spectrum of rare bone marrow disorders manifesting in children and adolescents that have been challenging to diagnose and treat since their initial descriptions decades ago. Facing these challenges medical doctors and researchers from Austria, Denmark, Germany, Italy and the Netherlands met the first time in 1993 to build the European Working Group of MDS with the aim to better understand the pathophysiology of MDS and JMML and thereby provide a better treatment for the patients. The group was later joined by Belgium, Czech Republic, Finland, Greece, Hungary, Ireland, Israel, Norway, Poland, Portugal, Slovakia, Slovenia, Spain, Sweden and Switzerland. In 2007, EWOG-SAA was established involving in principal the same countries/regions participating in EWOG-MDS. The “EWOGs” are intended to grow and are open to other participants.

We’ve partnered with Jazz Pharmaceuticals and the Cancer Support Community to develop a new program, ‘Find the Right Fit’. It is aimed to provide information and educational resources for people newly diagnosed with secondary acute myeloid leukemia (sAML) and their loved ones.

Foundation for the Promotion of Stem Cell and Bone Marrow Transplantation

An Electronic Learning (e-Learning) Platform structured to contribute to the continuous professional development processes of health professionals working in the field of hematology and to create a reference resource in Turkish in the field of hematology.

Hematon is the organisation for patients with blood or lymphoma, people who have undergone a stem cell transplant and their loved ones.

Our goal is to provide people living with rare diseases and their environment with relevant, professional information and adequate health, social and educational care in time.

Founded in 2000, the International Society of Geriatric Oncology, commonly referred to by its French acronym SIOG (Société Internationale d’Oncologie Gériatrique), is an international multidisciplinary network of healthcare professionals treating older cancer patients. The network spans over 80 countries and includes geriatricians, medical oncologists, surgical oncologists, radiation oncologists, anaesthesiologists, as well as nursing and allied health professionals.

Novartis is an innovative medicines company. Every day, we work to reimagine medicine to improve and extend people’s lives so that patients, healthcare professionals and societies are empowered in the face of serious disease. Our medicines reach more than 250 million people worldwide.

Japan MDS (Myelodysplastic Syndrome) Patient Support Group is the Global Patient Support of the International MDS Foundation As part of the Groups, we have an international information network.
We will provide information related to myelodysplastic syndrome (MDS), introduce patient Mr./Ms. to the International MDS Foundation-accredited Center of Excellence, support physicians, nurses, pharmacists and patient Mr./Ms., share new research and treatment options, and inform clinical trials.

Blogs that discover new methods to treat yourself or stay in shape 

Hematology Specialization Association is a non-governmental organization established by hematology specialists and does not pursue any commercial purpose. One of the main objectives of our association is to ensure that the society has access to accurate information about hematological diseases.

Leukaemia Care is the UK’s leading leukaemia charity. For over 50 years, we have been dedicated to ensuring that everyone affected receives the best possible diagnosis, information, advice, treatment and support.

If you or someone you know has been diagnosed with blood cancer, we’re here as Australia’s only dedicated blood cancer support service. Our experienced team will help navigate the emotional, physical, and practical challenges of blood cancer. We understand that a blood cancer diagnosis can have a huge impact on every aspect of your daily life. Our Blood Cancer Support Coordinators are with you for every step: from diagnosis, treatment, recovery, end-of-life care and bereavement. The Leukaemia Foundation supports people impacted by all blood cancers. 

The Leukemia Aid RHEIN-MAIN is committed to adult patients with all haematological diseases (affecting the blood and lymphatic system) and their relatives – contrary to what is evident in the name of the association

The Civil Association Lymphomas Argentina is a non-profit association that works to disseminate information, create meeting spaces and offer guidance to patients with Lymphomas, Myelodysplastic Syndromes and Myelofibrosis, in order to help the knowledge of these diseases, providing containment and thus contributing to improving the quality of life of people who live with them.

One in three people in Denmark will get cancer before they turn 75. The Danish Cancer Society gathers a strong and active community against cancer. Because cancer must be fought, and it is useful when we stand together.

Our mission is to accelerate health equity. We do this by delivering medication, technology, and services to patients facing cancer and other critical illnesses, focusing our energy on those no one else is helping.

Mayo Clinic is the largest integrated, not-for-profit medical group practice in the world. We're building the future, one where the best possible care is available to everyone — and more people can heal at home. Our relentless research turns into earlier diagnoses and new cures. That's how we inspire hope in those who need it most.

We are an international umbrella organisation that aims to ensure MDS patients, regardless of where they live, have access to the best multi-professional care. We aim to provide member organisations, patients and healthcare teams with the resources and the latest information about MDS, including current treatment options, large international projects and events of Interest to the whole community. We aim to share among our members best practice and skills, and become a forum for advice and guidance on a variety of issues affecting patients, such as cost effectiveness of drugs and treatments, fertility issues and many more. We would like to campaign together, join forcers to amplify the voice of smaller organisations and help patients and health professionals to establish new patient support groups where they don’t exist.

MDS (Myelodysplastic Syndromes) are a complex group of malignant blood disorders that are particularly detected in older age. The variety of symptoms makes it difficult to share experiences and also explains the lack of local support groups. Based on these experiences, we founded the nationwide non-profit self-help association MDS-NET Germany e.V. in May 2012.

The MDS Patient Interest Community is an association of patients, relatives, friends, caregivers and doctors.

MPN Advocacy and Education International is dedicated to providing the knowledge, support, and resources patients will need as they adjust to living with an MPN through educational symposia in several cities each year, website access, free webcasts of each program, collateral materials, and direction to people, resources and other organizations that can help.

MPN Research Foundation is dedicated to funding and advancing original research in pursuit of new treatments — and eventually cures — for essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF), blood cancers known collectively as myeloproliferative neoplasms (MPNs).

Patient Power® is a leader in supporting patients with cancer and caregivers in their treatment journey. Founded by Andrew and Esther Schorr, Patient Power is devoted to supporting cancer patients, care partners and their loved ones through education and advocacy – empowering them to get the right treatment at the right time, while engaging the best healthcare team possible. Patient Power interviews top medical experts and researchers to offer the latest findings and information, as well as personal accounts from dedicated advocates, patients, and care partners.

NCI is the federal government's principal agency for cancer research and training. NCI is deeply committed to the core values of equity, diversity, and inclusion that allow all staff to reach their potential and fully contribute to the institute’s cancer mission

For the thousands of people diagnosed every year with life-threatening blood cancers like leukemia and lymphoma, a cure exists. Over the past 35 years NMDP has managed the most diverse marrow registry in the world. We work every day to save lives through transplant.

The National Comprehensive Cancer Network^® (NCCN^®) is a not-for-profit alliance of 33 leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, equitable, and accessible cancer care so all patients can live better lives.

The Nordic MDS Group (NMDSG) is a scientific and educational organisation aiming to improve management for patients with myelodysplastic syndromes, and to facilitate MDS-related research. The group was founded in 1984 and encompass all Nordic countries. NMDSG provides guidelines for MDS management on-line and patient information in the different Nordic languages. The group runs a program for investigator-initiated clinical trials, as well as biobank and diagnostic projects. 

The Nursing Home Abuse Center (NHAC) was founded on time-honored principles of restoring dignity for some of our most vulnerable and valuable citizens. Before we can begin to resolve the issue of nursing home abuse, we must understand what it is.

Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organization. PEN’s mission is to fortify cancer patients and care partners with the knowledge and tools to boost their confidence, put them in control of their healthcare journey, and assist them in receiving the best, most personalized care available to ensure they have the best possible outcome.

The goal of Patient Resource LLC is to empower people who are suffering with life-altering diseases by giving them the most comprehensive and up-to-date guides to treatment and facilities for their disease, free of charge. The information is written for ease of understanding and is offered in printed publications and online at PatientResource.com.

Patient Worthy^® is an online publication that provides relevant information to rare disease patients, caregivers and advocates alike. We connect those impacted by rare conditions with educational resources, advocacy groups, and news updates regarding rare disease research from across the globe. Our goal is to amplify the voices of those in the rare disease community, feature the institutions that serve them, and foster solidarity across diagnoses.

Red Cross volunteers and staff work to deliver vital services – from providing relief and support to those in crisis, to helping you be prepared to respond in emergencies.

The CZECH MDS GROUP arose from the MDS working section at the Czech Society of Hematology as a civil society organization of medical experts dealing with diagnostics, treatment, research, and education in the field of myelodysplastic syndrome. The CZECH MDS GROUP plays an important role in improvement of haematologists' professional skills in diagnostics and health care for patients with the MDS.

This sleep guide offers information on what causes sleep disturbances in cancer patients along with  tips to share with loved ones affected by cancer.

Since 2009, Disability Benefits Help has provided information to individuals who are seeking to apply for Social Security Disability benefits or have been denied after applying for Social Security disability. We inform those with disabilities about the Social Security Disability application process and help them locate an attorney or advocate who can assist them by providing contact information of an attorney or advocate who represents applicants for disability benefits before the Social Security Administration. Our hope is that the information on our site can assist those in need by helping people determine whether or not they qualify for Social Security disability benefits.

We are the largest nonprofit dedicated to creating a world without blood cancers. Since 1949, we've invested more than $1.7 billion in groundbreaking research, pioneering many of today's most innovative approaches. LLA is a global leader in the fight against blood cancer.

At touchONCOLOGY, we push the boundaries of online medical education to bring you innovative formats and valuable insights into learning behaviours. Our educational content enhances your ability to provide better patient care and drive positive change in clinical practice. With patients at the heart of everything we do, we aim to help you significantly improve health outcomes.

Hematology Specialist Association (HSA) is a non-profit organization for both clinicians and scientists devoted to the scientific, medical, practical, technical, administrative, and educational aspects of Hematology in Turkey and beyond. By providing educational and training opportunities, the HSA contributes towards improving the health of patients suffering from blood diseases.

MDS UK Patient Support Group is a charity started in 2008 to raise awareness and offer support and information to patients and families affected by Myelodysplastic Syndromes & CMML . We also campaign to make treatments available and to increase Quality of Life (Q0L) for MDS & CMML patients.  If you have MDS or CMML, or someone in your family has, you're in the right place.

We provide comprehensive support to patients over 18 years of age who suffer from a hematological disease and who require a bone marrow transplant.

WHYSaveALife Foundation, is a 501(c)3 non-for-profit organization determined to increase the survival rate for minorities diagnosed with cancer. WHYSaveALife Foundation’s Mission is to increase the number of African-Americans and other under-represented ethnic groups to the National Marrow Donor Program (NMDP).