Join the Conversation, Make an Impact
Your Voice
Participate in patient surveys and advisory boards to shape the future of MDS care. Your insights make a difference.
Survey is Active MDSF Patient & Caregiver Survey
The MDS Foundation would like to understand more about you (the MDS patient and the MDS caregiver), your health, and your educational and support needs.
Survey is Active The MDS Global Survey
The MDS Global Survey, conducted by the MDS Alliance, aims to understand and raise awareness of the challenges faced by individuals living with Myelodysplastic Syndromes (MDS). By gathering insights from patients and caregivers worldwide, the survey seeks to inform decisions that enhance quality of life and access to care for the MDS community.
Cancer Support Community
This global non-profit network includes 196 locations, such as CSC and Gilda's Club centers, hospital partnerships, and satellites. They offer over $50 million in free support services to patients and families. The network also conducts research on cancer patients' emotional, psychological, and financial journeys and advocates for supportive policies at all government levels.
Rare Patient Voice
Rare Patient Voice, LLC connects patients and family caregivers of rare and non-rare diseases with opportunities to share their opinions with companies and researchers by participating in all types of research studies. These include surveys and phone interviews, online bulletin boards, focus groups, clinical trials, and more.
Smarter. Stronger. Together.
The "Smarter. Stronger. Together." initiative by the MDS Foundation offers essential resources for patients with Myelodysplastic Syndromes (MDS). It includes key questions for patients to discuss with healthcare providers regarding diagnosis, treatment, and clinical trials.
