Patient Support Groups

In 1987, the concerned parent of a child with aplastic anemia founded the Aplastic Anemia Family Association of Ontario. One of the very first goals of the Association was to advocate for the formation of a national bone marrow donor registry in Canada. Today, the Aplastic Anemia and Myelodysplasia Association of Canada is a federally incorporated and a registered national charity with the ambitious goal of providing a seamless support network for every Canadian patient, family member, friend and concerned healthcare provider dealing with aplastic anemia, myelodysplasia or PNH.

ABRALE (Brazilian Lymphoma and Leukemia Association) is a non-profit organization, with national scope, created in 2002 by patients and family members with the mission of offering help and mobilizing partners so that all people with cancer and blood diseases have access to the best treatment.

AEAL, Spanish Association of People Affected by Lymphoma, Myeloma and Leukemia, was constituted by patients, on October 8, 2002. The objectives of AEAL are training, information and support for those affected by oncohematological diseases.

AEAL has a national scope, belongs to the GEPAC (Spanish Group of Cancer Patients), FEP (Spanish Patients' Forum) and is a full member and representative in Spain of the international organizations ECPC (European Cancer Patient Coalition), LC (Lymphoma Coalition) and Alianza Latina, sharing their same objectives and actively collaborating in national and international projects and meetings.

AIL promotes and supports scientific research for the treatment of leukaemia, lymphoma and myeloma, funding innovative studies and laboratories throughout Italy. The Association assists and accompanies patients and families at all stages of the process, in close contact with the Hematology Centers that it supports on an ongoing basis to better meet the needs of patients and caregivers. Our work aims to improve the quality of life of those fighting against blood cancer and raise public awareness of the fight against these diseases.

Arizona MDS Virtual Support Group meets on the second Thursday of every month 3:00 – 4:30 pm AZ Time. For dial-in information and for any questions, contact Adolfo Yniguez

The Swedish Blood Cancer Foundation is a non-profit foundation with a 90-account account that was established in 1987 by the Swedish Blood Cancer Association. The fund's work aims to support blood and blood cancer research in adult haematology in Sweden. The 90-account is controlled by the Swedish Fundraising Control, which is a confirmation that the fundraising is managed in a responsible manner and that the money goes to the purpose without unreasonable costs. In other words, the 90 account guarantees that your contribution as a donor ends up in the right hands.

We are here for people who are dealing with breast cancer. To ensure that you have access to good care. To answer your questions. To support you. We are right next to you, right behind you or right in front of you. Whatever you need. We're here

Georgia MDS Support Group is led by Maureen Ratliff and meets at the Sewell Mill Library, 2051 Lower Roswell Road, Marietta, GA 30068 in the library’s meeting room from 3:00 – 4 PM CT. For more information, contact group leader, Maureen Ratliff

Greater Washington, DC Area MDS Virtual Support Group meets on the second Saturday of every month 10:30 am – 12 pm ET. For dial-in information and to register, call Brian Anderson

Inaugural MDS Support Group presentations in Hebrew

The Japan MDS Patient Support Group is the sixth patient support organization
in the world to be established with the support of the International MDS Foundation

The Leukemia Aid RHEIN-MAIN is committed to adult patients with all haematological diseases (affecting the blood and lymphatic system) and their relatives - contrary to what is evident in the name of the association

The LHRM represents its patient interests both regionally and nationally and at European and international level.

We are a self-help association that operates nationwide.

"We want to contribute to a better understanding of the disease MDS and to living with it."

The MDS Patient Interest Community is an association of patients, relatives, friends, caregivers and doctors.

Minnesota MDS Patient Support Group meets quarterly 3:30 PM at Burnhaven Library Main Meeting Room, 1101 County Road 42 W, Burnsville, MN 55306 (corner of Burnhaven and Co. 42). Contact Group Leader, Lori Nelson

National/International MDS Virtual Support Group meets on the second Wednesday of each month, from 7:30 – 9:00 pm ET. That is subject to change. For dial-in information and to register, call Brian Anderson

NFK stands up for the 900,000 people living with or after cancer and their loved ones. But also for people with a hereditary predisposition or predisposition to cancer. The interest of the cancer patient is the daily driving force in everything we do.

Philadelphia, Pennsylvania MDS Family: Coping and Caring Support Group.  Contact Rochelle Ostroff-Weinberg

Pittsburgh, Pennsylvania MDS Support Group meets on the first Thursday of every month 1:00 – 2:30 pm at Our Clubhouse, 2816 Smallman Street, Lobby Level Library Room, Pittsburgh, PA 15222. Contact Morgan Donato

The CZECH MDS GROUP arose from the MDS working section at the Czech Society of Hematology as a civil society organization of medical experts dealing with diagnostics, treatment, research, and education in the field of myelodysplastic syndrome. The CZECH MDS GROUP plays an important role in improvement of haematologists' professional skills in diagnostics and health care for patients with the MDS.

Spanish-Speaking National/International MDS Virtual Support Group meets on the first Wednesday of the month 3:00-4:30 pm AZ Time. For dial-in information, contact Adolfo Yniguez

The founders of the organization, all volunteers, came together to promote the interests, welfare and quality of life of myelodysplastic syndrome patients and their families.

The Chicago MDS Virtual Support Group meets on the third Tuesday of every month from 1:30-3:00 pm CT. For dial-in information and for any questions contact Kim Jensen

The Northern California MDS Virtual Support Group meets on the second Thursday of every month 6:30-8:00 pm PT. For dial-in information and for any questions contact Jill Whitney

The Southern California MDS Virtual Support Group meets on the third Saturday of every month 10:00-11:30 am PT.  For dial-in information and for any questions contact Joan Powell

MDS UK Patient Support Group is a charity started in 2008 to raise awareness and offer support and information to patients and families affected by Myelodysplastic Syndromes & CMML . We also campaign to make treatments available and to increase Quality of Life (Q0L) for MDS & CMML patients.  If you have MDS or CMML, or someone in your family has, you're in the right place.