Join the Fight Against MDS
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Global Support, Local Connections
Patient Support Groups
Support groups can provide you with practical and emotional support you may need during this time. The MDS Foundation has compiled a list of US and international MDS-specific support groups, as well as support groups that target multiple blood disorders.
Some support groups are independently operated with oversight from MDSF.
The MDSF has successfully coordinated the development of several patient support groups worldwide that are MDS-specific. The MDSF offers administrative and financial assistance to help those that would like to start an MDS support group in their region.
All MDSF partners are invited to join us in moving these efforts forward! If you are interested in joining others to help develop a much needed MDS support group in your region…
Support Groups
Arizona MDS Virtual Support Group
Arizona MDS Virtual Support Group meets on the second Thursday of every month 3:00 – 4:30 pm AZ Time. For dial-in information and for any questions, contact Adolfo Yniguez
Greater Washington, DC Area MDS Virtual Support Group
Greater Washington, DC Area MDS Virtual Support Group meets on the second Saturday of every month 10:30 am – 12 pm ET. For dial-in information and to register, call Brian Anderson
Minnesota MDS Patient Support Group
Minnesota MDS Patient Support Group meets at Burnhaven Library Main Meeting Room, 1101 County Road 42 W, Burnsville, MN 55306 (corner of Burnhaven and Co. 42). Meetings are held on an intermittent basis. Please contact the Group Leader, Lori Nelson, for details on upcoming meetings.
National/International MDS Virtual Support Group
National/International MDS Virtual Support Group meets on the second Wednesday of each month, from 7:30 – 9:00 pm ET. That is subject to change. For dial-in information and to register, contact Jill Dolgin.
Philadelphia, Pennsylvania MDS Family
Virtual MDS Family: Coping and Caring Support Group. Contact Rochelle Ostroff-Weinberg
The Chicago MDS Virtual Support Group
The Chicago MDS Virtual Support Group meets on the third Tuesday of every month from 1:30-3:00 pm CT. For dial-in information and for any questions contact Kim Jensen
The MDSF MDS Virtual Support Group
The MDSF MDS Virtual Support Group is led by the Director of Patient Care for the MDS Foundation. This group meets on the second Thursday of each month, from 6:00 PM - 7:00 PM CT. For dial-in information and to register, contact Ashley Moncrief.
The Northern California MDS Virtual Support Group
The Northern California MDS Virtual Support Group meets on the second Thursday of every month 6:30-8:00 pm PT. For dial-in information and for any questions contact Jill Whitney
The Southern California MDS Virtual Support Group
The Southern California MDS Virtual Support Group meets on the third Saturday of every month 10:00-11:30 am PT. For dial-in information and for any questions contact Joan Powell
Empower Your Community
The MDSF offers administrative and financial assistance to help those that would like to start an MDS support group in their region. You can make a meaningful impact on those affected by MDS so take the first step in building a supportive community.
Start Your Support GroupOur Supporters
Thank you to Bristol-Myers Squibb for supporting this initiative.
