The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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Advancing Collaborative Research and Advocacy
From global initiatives unraveling the complexities of MDS to focused research programs targeting specific mutations, these groups drive innovation and collaboration in the field. Discover how our diverse working groups contribute to a collective mission of improving care and finding cures for MDS.
In 2009 a group of international investigators aligned through the MDS Foundation created the International Working Group for the Prognosis in MDS (IWG-PM). The focus of this working group is aimed at defining the clinical, biologic and molecular features of MDS thus providing the foundation for understanding the nature and potential for progression of this spectrum of disorders.
In 2013 the MDS Foundation began working with the MDS/MPN International Working Group (MDS/MPN IWG) to help assist with their goal of identifying key knowledge gaps in the area of MDS/MPNs and facilitating international, collaborative, translational science geared to rapidly improving our understanding of these disorders.
In 2020, the MDS Foundation entered into a partnership with the RUNX1 Research Program (RRP) to spread awareness of the importance of mutational testing. Patients with a RUNX1 mutation are at an increased risk of developing blood cancers like MDS.
