Professional Resources
Materials
Access comprehensive information on Myelodysplastic Syndromes through our collection of downloadable resources. From detailed PDFs to clinical fact sheets, these materials are designed to provide valuable insights and support for healthcare professionals managing MDS.
Building Blocks of Hope (BBoH)
This program is designed to give patients and caregivers the in depth information that they are looking for and to allow them to take an active part in their MDS journey.
MDSF Newsletters
These newsletters are your gateway to the latest updates, research breakthroughs, and inspiring stories within the MDS community.
100 Questions & Answers
Newly revised and updated, 100 Questions & Answers About Myelodysplastic Syndromes provides authoritative and practical answers to the most common questions asked by patients and their loved ones.
Guide to Assistance Programs
We have assembled a listing of assistance programs available to MDS patients. It is important to know that there is support for those who cannot afford medicine or other healthcare costs.
MDS by the Numbers
This resource presents a concise yet comprehensive overview of key numerical insights, offering a data driven perspective on the prevalence, impact, and various aspects of MDS.
MDS Glossary
When dealing with an illness the medical terminology can be just as intimidating as the diagnosis. This Glossary of MDS Terms will help you to better understand your diagnosis, symptoms and possible treatments.
Out of Shape
Bergit Korschan-Kuhle is a courageous woman. She has been living with the diagnosis of MDS since 2006. In “Out of Shape” she takes the reader on a journey from her first symptoms over a decade ago to the present day.
Questions To Ask Your Doctor
Compiled by MDS patient groups and clinicians, this guide offers essential questions to ensure patients are well-prepared for consultations and better informed about their condition.
Take The Time
This PDF explains abnormal blood cell production and its symptoms, such as fatigue and infection risks. It outlines treatment goals aimed at improving quality of life and the necessity of multiple treatment cycles.
Understanding Your MDS
Do you know your MDS subtype, IPSS-R score and gene mutation profile?
What Does My Bone Marrow Do?
A comprehensive guide that explores the intricacies of the bone marrow, shedding light on its crucial role in health and its connection to Myelodysplastic Syndromes (MDS).
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