The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
4573 South Broad St., Suite 150
Yardville, NJ 08620
A global non-profit advocacy organization, supporting patients, families and healthcare providers in the fields of MDS and its related diseases for over 30 years
© 2024 MDS Foundation. All rights reserved.
Compiled by MDS patient groups and clinicians, this guide offers essential questions to ensure patients are well-prepared for consultations and better informed about their condition.
Frequently, patients may get overwhelmed by the information provided by the healthcare team and may not think of specific questions to ask during consultations or clinic visits. This is perfectly normal as these visits are often stressful, with complex disease and treatment related information.
In the following video, Professor Mittelman reviews his list of the 10 most important questions to ask your doctor or healthcare team.
Having a list of questions will help you prepare for your visits and may help you better understand your diagnosis, treatment options, and strategies for wellness. The following list was compiled by MDS patient groups in collaboration with clinicians and updated by the MDS Foundation’s Nurse Leadership Board.1,2
Not all questions may apply to your unique MDS journey, however, we hope this list will help alleviate some of the stress surrounding your diagnosis and discussions with your healthcare team.
A diagnosis of Myelodysplastic Syndrome (MDS) is a shock to anyone. The MDS Foundation is here to support patients and their families as they navigate their care options. We provide information about the disease, work with healthcare providers, and fund research.
The MDS Foundation strives to learn from patients’ experiences. In partnership with Clinical Care Options, LLC., the MDS Foundation surveyed patients with MDS about their perceptions of treatment and care. The following results showcase patients’ concerns during the treatment process and what they would like from their care team. Together we are ensuring the patient voice is heard!
Our goal, by sharing this information with patients, healthcare providers, and researchers, is to emphasize the patient experience and what can be improved.
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