MDS Message Board Transitions to an Enhanced Platform – MDS Exchange

The MDS Foundation is excited to announce the transition of its MDS Message Board to an enhanced and more user-friendly platform - MDS Exchange.  

The MDS Foundation recognizes the challenges of navigating myelodysplastic syndromes (MDS), and we believe that finding support should be effortless. That’s why MDS Exchange is designed to provide a more supportive, accessible, and engaging experience. With enhanced features, users can easily discover relevant discussions, connect with others who understand their experience, and access valuable disease-specific resources – all in one seamless and safe space.  

Powered by cutting edge technology, MDS Exchange enhances engagement, delivers deeper insights, and strengthens community connections. This upgrade is a testament of the MDS Foundation’s ongoing commitment to creating a safe, collaborative, and supportive online community for MDS patients, caregivers, and loved ones to share experiences, ask questions, and find the support they need, exactly when they need it. 

MDS Exchange - New Features for an Improved Community Experience 

MDS Exchange is more than just a platform—it’s a thriving, supportive community designed to empower the MDS community every step of their journey. The MDS Exchange offers robust new features designed to make the platform more intuitive, engaging, and supportive:  

• Enhanced Discussion Boards: Join discussions on managing MDS symptoms, learning about treatment options, navigating life with MDS, and much more. 
• Expanded Community Support: Connect with others in the MDS community—patients, caregivers, and advocates—to share experiences, find encouragement and support, and build meaningful relationships. 
• Ask Questions and Get Answers: Post questions and receive insights from others who understand your journey and can make you feel a little less alone. 
• Trust the Ambassadors: Engage with MDS Ambassadors—patients, caregivers, and experts—who help to foster meaningful conversations and amplify the patient voice. 

"At the MDS Foundation, patients are at the heart of everything we do,” said MDS Foundation CEO, Peggy Ann Torney. “Building a strong, supportive community and truly understanding what matters most to them is our priority. With MDS Exchange, we are leveraging cutting-edge technology to help foster meaningful connections, enhance engagement, and provide vital resources. Staying at the forefront of innovation allows us to better serve the MDS community—ensuring all those impacted by this rare cancer have access to the support, information, and network they need to make the best decisions for their treatment and long-term care." 

How to Join the MDS Exchange 

If you were previously a member of the MDS Message Board, no action is needed—your sign-in details have been securely transferred to MDS Exchange, ensuring a smooth and uninterrupted transition. You can log in and continue engaging with the MDS community today.  

For new members, joining is quick and easy. Simply register for an account, and you’ll gain instant access to discussions, support, and valuable MDS resources.

Connect With the MDS Community

Looking Ahead 

As we continue to enhance the MDS Exchange, we will be introducing more robust features and opportunities for engagement. Our goal is to make sure the MDS community feels supported and empowered in every step of their journey. 

About the MDS Foundation, Inc. 

The Myelodysplastic Syndromes Foundation (MDSF) is a global nonprofit organization dedicated to supporting patients and caregivers affected by myelodysplastic syndromes (MDS), a group of rare and life-threatening bone marrow disorders, and the healthcare professionals who treat these rare cancers. Since our founding more than 30 years ago, we have remained steadfast in our mission to advance research, provide critical education and support services, and improve treatment options for those impacted by MDS.